Archive - Just an Engineer with USH

The Supplement Nobody Questioned

What a 2023 Harvard study found about vitamin A and RP -- and why nobody told us

Feb 23 • Mark G. Hubers

The 20/25 Paradox

I read 20/25 on an eye chart. I can barely see the wall it's hanging on.

Feb 17 • Mark G. Hubers

The Hope Nobody Explains

One Patient, 50 Trials, and the Guidance Gap That Affects Us All

Feb 17 • Mark G. Hubers

Living with Usher Syndrome: A Window Into My Shrinking Sensory Map

What it feels like inside a shrinking sensory world

Feb 15 • Mark G. Hubers

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