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Living with Usher Syndrome: A Window Into My Shrinking Sensory Map
What it feels like inside a shrinking sensory world
Feb 15
•
Mark G. Hubers
1
The Supplement Nobody Questioned
What a 2023 Harvard study found about vitamin A and RP -- and why nobody told us
Feb 23
•
Mark G. Hubers
4
4
The 20/25 Paradox
I read 20/25 on an eye chart. I can barely see the wall it's hanging on.
Feb 17
•
Mark G. Hubers
1
The Hope Nobody Explains
One Patient, 50 Trials, and the Guidance Gap That Affects Us All
Feb 17
•
Mark G. Hubers
1
Just an Engineer with USH
An engineer with Usher Syndrome digs through medical journals and writes about what the system misses.
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